New research into chronic condition reveals long-term cost to UK economy
On the one hand, it's disappointing how M.E. hits the media today mainly because its effects are a drain on the UK economy at a time of austerity.
On the other hand, there is a note of concern, even compassion, hidden in the practical call for our disease to be more effectively addressed.
M.E. has cost the country a lot.
M.E. has cost many of us our careers, our former quality of life, our perception as worthwhile human beings in the eyes of society and press, our future prospects, our dearest dreams.
So this new study by the University of Bristol is timely.
It outlines the impact of the illness on employment and productivity.
But it also reminds people everywhere of the hidden, denied suffering behind those figures:
"In addition to the moral imperative, there is clearly a powerful economic argument for addressing the needs of this greatly neglected patient group," says Sir Peter Spencer, CEO of Action for M.E.
In the end, M.E. patients are long past caring whether it comes via "the moral imperative" to look our way after all these wasted years, or because of the "powerful economic argument" which is the only language those in power understand. We care only that it comes at last.
As Dr Esther Crawley, lead author of the report puts it:
"Above and beyond these financial costs, ME or CFS has a huge impact on quality of life. "
With M.E., we are called to live with that reduced quality of life day in, day out.
This, alongside yesterday's news item I discussed here, we have every reason to feel hopeful again.
“There is an urgent need for more adequate NHS provision for those affected by this often life-ruining illness that is costing so much." The words of Colin Barton, Chair of Sussex and Kent ME/CFS Society.
The hopes and dreams of all of us.
We have to trust they won't be trampled on this time.
Tread softly because you tread on my dreams - W.B. Yeats
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