Quote "It is important to make very clear that ME/CFS is not a somatoform disorder but a serious multi-system organic disease." Unquote.
Quote: "The international evidence-base is that ME/CFS is a serious, inflammatory multi-system disorder with well-documented abnormalities in the central nervous system, the autonomic nervous system, the cardiovascular, respiratory, neuroendocrine, immune and gastro-intestinal systems, with convincing evidence of muscle pathology, defects in gene expression, specific HLA antigen expression, and with irrefutable evidence of chronic inflammation." Unquote.
How long can the perpetrators of the PACE (Pacing, graded Activity, Cognitive Behavioral Therapy; a randomised Evaluation) trials deliberately surpress the evident truths in the above statements? How long will those who engineered and funded these skewed, flawed and cynically targeted trials, including the DWP and psychiatric lobby, get away with this international scandal devastating lives?
Will some influential stuffed shirt be telling me next that my Type 1 Diabetes is "all in the mind"? Can I hear a cry from the nightmare future going: "Drop the syringe, you pathetic slacker, and start producing insulin like normal upright citizens with real backbone do?"
After all these years, we wonder why folks still pat us metaphorically on the head and say "Hope you're feeling well."
Catch up, world! Our lives are slowly running out while you fail to get your heads round the all too real M.E. we have to live with every single day!
Professor Malcolm Hooper's complaint to the Lancet reminds how the PACE trials are actually designed to withdraw support and help from patients with M.E./CFS in order to deny the illness and so remove benefits and credibilty from the genuinely ill.
A long read, but one that makes plain all that is rotten in the worlds of medicine, healthcare and research, welfare reform and spin.
Formal complaint to Lancet about the PACE trial paper
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