Wednesday 20 October 2010

How far have we come?

Heard today, sadly, about a comment  from an employer about a worker with ME who has collapsed and been ordered to take time off.

"Oh, she's the kind of person [my disgusted italics] who goes full tilt and then flops."

No, my friend, (who should know better, professing to be in the "healing" business): she's a actually a person who has contracted,  to quote the World Health Organisation:

"a chronic, inflammatory, primarily neurological disease that is multisystemic, affecting the central nervous system, immune system and cardiovascular system, the endocrinological system and musculoskeletal system. ME can cause a wide variety of symptoms, including changes in sensory tolerance, visual problems, exertional muscle weakness, difficulties with coordination and speech, severe fatigability, cognitive impairment, problems with balance, subnormal or poor body temperature control (due to circulation issues) and severe pain which causes a varying degree of impaired mobility and disability in all cases.
Myalgic Encephalomyelitis affects the brain and spinal cord which control the body, allow thought and sensory processing, causing dysautonomia, impaired thinking and loss of internal homeostasis, the process whereby the body maintains a consistent internal environment in response to external stressors. Cellular metabolism and communication is disrupted, causing inefficiency in all biological processes. This includes the cellular mitochondria which process fuel to make energy, resulting in a deficiency of adenosine-triphosphate ATP with a chronic, severe, measurable loss of sustainable strength on exertion. A hallmark of ME is intolerance to previously trivial effort and deterioration through persistent or repeated exertion (often resulting in relapse).
Current theory suggests ME results from a persistent viral infection and/or attacks by an individual's immune system on the nervous system, musculoskeletal system, and blood vessels. It has been classified by the World Health Organisation as an organic brain disease since 1969." 

Oh, but that would be to quit peddling the patronising age-old dangerous misinformation ME patients have been suffering for decades, wouldn't it?

Sorry - long quote. Rant over.

I also smiled through my gritted teeth again at the sick but increasingly unfunny joke:

"Even the comatose can be put to work. As draft excluders."

Enough. Or I might type something I'll regret (if I could sit up for longer)! 


The Father still loves me!

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